|
Home
American Behcet's Disease Association ABDA
American Behcet's Disease Association ABDA
Contact:
MAILING ADDRESS:
NEW!
American Behcet's Disease Association
PO Box 869
Smithtown, New York 11787-0869
|
HOTLINE:
1-800-7BEHCETS
Please note that this hotline is
staffed by volunteers. Calls are
taken between
9:00am - 9:00pm
Eastern Standard Time.
Thank you! |
OFFICE PHONE: 1-631-656-0537 • FAX: 1-480-247-5377 |
E-MAIL:
The best way to reach us!
|
About the ABDA
HISTORY:
The American Behcet's Foundation was founded by a parent of a child with Behcet's Disease in 1978 in Orange County, California. In 1986, the Organization changed its name to The American Behcet's Association (ABA) and was moved to Rochester, Minnesota. Recently the name was changed to the American Behcet's Disease Association (ABDA) to clarify the nature of the organization. In 1987, the American Behcet's Association was incorporated as a nonprofit organization in the state of Minnesota and in 1989, was granted 501(c)3 tax exempt status by the Internal Revenue Service. In 1988, a medical advisory board was formed of Behcet's experts from around the country.
MISSION:
The American Behcet's Disease Association works towards the following goals:
- Locating people with Behcet's Disease and providing them with information and support.
- Providing current and pertinent educational information to the medical community and to aid in diagnosing and treating Behcet's Disease.
- Decreasing isolation and stress from the lives of people with Behcet's Disease and their family members.
PATIENT AND FAMILY SUPPORT:
The ABDA works hard to support patients, family and caregivers in the following ways:
-
The American Behcet's Disease Association Newsletter is now published approximately four times a year. The newsletter is a critical part of our effort to bring news of diagnosis, treatment, and research and support to our network.
-
The ABDA ListServe is an e-mail forum supported by the ABDA where hundreds of Behcet's Sufferers from all over the world communicate as a family and share knowledge, advice, support and hope.
-
Pamphlets, articles and books with some of the most current information about Behcet's Disease and its treatment are available online, or through the newsletter.
- The ABDA Website at www.befhcets.com is full of information and support, including:
- A place to post your story or reach out to others of similar situations
- A place to recommend or search for a doctor who is knowledgeable about Behcet's Disease
- Message Boards where members can post and review posts about a variety of Behcet's related topics
- Access to a chat room where sufferer's chat on-line with others around the world
- Event calendars and news about the Behcet's Community
- We continue to operate an 800 information hotline (1-800-7BEHCETS) with volunteers answering 7 days a week.
ABDA MEDICAL BOARD OF DIRECTORS:
The Association is working toward educating the medical community. We have a contributing Medical Board that helps us achieve that goal.
ABDA EXECUTIVE BOARD:
|
|
|